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fighting to reverse Rett

Our Mission

Reverse Rett works to speed treatments and a cure for Rett Syndrome and related MECP2 disorders by funding research that will have a practical and positive impact on our children’s lives. We fund research from basic science to clinical trials and work to facilitate the translation of this work into clinical applications for people with Rett Syndrome and related MECP2 disorders.

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latest fundraiser post

Fundraise

Stand-Up for Rett

By Beth Johnsson

Rett Syndrome and comedy are not always the most obvious partners, but Lori Hockey, who is mum to 22 year old Kassie, has successfully brought them...

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latest fundraising event

  • 20
    Apr

    Snowball get together 4 Rett

    Hold your own Snowball Get Together 4 Rett. You won’t only help raise awareness of Rett Syndrome within your community, you’ll also have the opportunity to raise the...

  • 20
    Apr

    15 for 15: The Force of Friends

    Can you challenge yourself to recruit 15 friends to make a difference to girls and women suffering with Rett Syndrome in 2015? 

    There are hundreds of ways to raise...

  • 09
    May

    Just Walk 2015

    The 60k walkers led by Greg McKeague at Just Walk 2014

    For the third year running Just Walk stalwart, Greg McKeague, is organising a Reverse Rett Team for this year's...

  • 10
    May

    Great Manchester Run

    Join Team Reverse Rett at the Great Manchester Run.

    Europe's biggest 10K running event has seen more than a quarter of a million enthusiastic runners take to the...

  • 04
    Jul

    Reverse Festival

    Reverse Festival will be held on July 4th in Nottinghamshire. Money raised will benefit Reverse Rett, Rett UK and Cure Rett.

    There will be live music from The House of...

Events

see our upcoming events and how you can get involved.

Upcoming events

20
Apr

The Big Give: Cash for Clothes

Do you have a loft full of old clothes you haven’t worn for years? Is your wardrobe in need of a...

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20
Apr

Snowball get together 4 Rett

Hold your own Snowball Get Together 4 Rett. You won’t only help raise awareness of Rett Syndrome...

read more
20
Apr

15 for 15: The Force of Friends

Can you challenge yourself to recruit 15 friends to make a difference to girls and women suffering...

read more
24
Apr

The Text Ellis Campaign Anniversary Ride

On April 24th Richard Page and friends will be cycling 130 miles from Leicester to Burnley in the...

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Social hub

Latest News

07
Apr

Stand-Up for Rett

By Beth Johnsson

Rett Syndrome and comedy are not always the most obvious partners, but Lori...

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01
Apr

Back to School

By Beth Johnsson

Twenty years ago, I was in the sixth form of Simon Langton Girls’ School and was...

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latest tweets

Since Aimee was diagnosed w #rettsyndrome 5yrs ago, her mum has never stopped fighting. bit.ly/1b6w7aV @reverseRett #raredisease

Reverse Rett18/04/2015

Great pics of the inspirational @Karl_Morris from Changemakers Workshop in Manchester #rettsyndrome @TheMindFactor pic.twitter.com/VfAvUhfhhE

Reverse Rett17/04/2015

Yasmin is only 6 & walking 10K to speed treatment for her sister who has #rettsyndrome @reverseRett @JustGiving bit.ly/1E4BswF

Reverse Rett16/04/2015