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fighting to reverse Rett

Our Mission

Reverse Rett works to speed treatments and a cure for Rett Syndrome and related MECP2 disorders by funding research that will have a practical and positive impact on our children’s lives. We fund research from basic science to clinical trials and work to facilitate the translation of this work into clinical applications for people with Rett Syndrome and related MECP2 disorders.

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latest fundraiser post

Fundraise

Never Give Up: Jen runs the Manchester 10k in memory of Ellie

Sunday May 10th will be an emotional day for Jen Benson. Jen is running the Manchester 10K as part of Team Reverse Rett and will be doing it in memory of her daughter,...

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latest fundraising event

  • 27
    Mar

    Snowball get together 4 Rett

    Hold your own Snowball Get Together 4 Rett. You won’t only help raise awareness of Rett Syndrome within your community, you’ll also have the opportunity to raise the...

  • 28
    Mar

    15 for 15: The Force of Friends

    Can you challenge yourself to recruit 15 friends to make a difference to girls and women suffering with Rett Syndrome in 2015? 

    There are hundreds of ways to raise...

  • 29
    Mar

    2015 Cheshire Cat

    Team Ciara who will be preparing for their Port2Port Challenge at the Cheshire Cat

    Join Team Ciara at their first race of 2015 in Crewe at the Cheshire Cat. There are...

  • 09
    May

    Just Walk 2015

    The 60k walkers led by Greg McKeague at Just Walk 2014

    For the third year running Just Walk stalwart, Greg McKeague, is organising a Reverse Rett Team for this year's...

  • 10
    May

    Great Manchester Run

    Join Team Reverse Rett at the Great Manchester Run.

    Europe's biggest 10K running event has seen more than a quarter of a million enthusiastic runners take to the...

Events

see our upcoming events and how you can get involved.

Upcoming events

27
Mar

Snowball get together 4 Rett

Hold your own Snowball Get Together 4 Rett. You won’t only help raise awareness of Rett Syndrome...

read more
28
Mar

15 for 15: The Force of Friends

Can you challenge yourself to recruit 15 friends to make a difference to girls and women suffering...

read more
29
Mar

2015 Cheshire Cat

Team Ciara who will be preparing for their Port2Port Challenge at the Cheshire Cat

Join Team Ciara...

read more
24
Apr

The Text Ellis Campaign Anniversary Ride

On April 24th Richard Page and friends will be cycling 130 miles from Leicester to Burnley in the...

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Social hub

Latest News

02
Mar

More news about Trofinetide

By Rachael Bloom

Neuren have announced today (March 2nd 2015)  that their FDA application for...

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25
Feb

Treating Rett symptoms with existing medications: a targeted approach

There are many obvious difficulties facing people with Rett Syndrome. Not being able to speak,...

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latest tweets

Jens story is truly inspirational! Please read + RT reverserett.org.uk/news/jen-runs-… pic.twitter.com/5UUCwE1gCP

Reverse Rett06/03/2015

What I meant to say was-so excited to be heading to #GDLS2015 agenda looks fab, v relevant to current work @reverseRett @GeneticDisUK

Rachael Bloom06/03/2015

Heading to @GeneticDisUK Leadership Symposium this aft. V packed/ interesting agenda..all important stuff for @reverseRett #rettsyndrome

Rachael Bloom06/03/2015