Rett Syndrome knows no boundaries
There are girls and women with Rett Syndrome all over the world, across all ethnicities, from all socio-economic backgrounds. Baby girls with Rett Syndrome are born to mothers of all ages, races and religions.
They are oldest, youngest, middle child, only child. Each time Rett strikes, it strikes somebody's grandaughter, somebody's sister. Somebody's daughter.
Rett Syndrome robs these girls and women of their speech and hand use and mobility at an early age, but it doesn't stop there. It robs them of the other roles which most little girls grow into without notice: best friend, sweetheart, lover, wife, mother.
The diagnosis of Rett Syndrome is devastating in any language, anywhere in the world. What unites us is our hope for a better future for our children.
At the Rett Syndrome Research Trust UK, we are not interested in profit or credit, only in accelerating the speed at which treatment for Rett Syndrome can be delivered.
Working closely with the Rett Syndrome Research Trust, whose founders and advisors are largely responsible for the major advances in the field over the last ten years, RSRT UK is proud to be part of a highly-focused and intensive global research effort.
'This syndrome devastates the lives of children all over the world. The determined commitment of a global network of families is crucial if the promise of reversal is to be achieved in our lifetimes. We applaud the dedication, energy and foresight of the parents spearheading RSRT UK and look forward to working with like-minded families everywhere who share our urgency, focus and determination to reverse Rett.'
Monica Coenraads
Executive Director, The Rett Syndrome Research Trust
Wherever you are in the world, if you are interested in joining the global effort to reverse Rett Syndrome, contact us:
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