Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

What a Weekend for Rett research!

By Beth Johnsson

There’s that saying, isn’t there, about how you wait an hour for a bus and then two come along at once? Well it wouldn’t be fair to say that we are ever sitting around waiting for fundraising events to happen – our supporters are...

NCS The Challenge take on Rett

By Beth Johnsson

Whilst most students (and teachers) across the country fled the classrooms mid-July and took a well-earned rest for the summer, some of them (including me) headed back to school for a few days to embark on this summer’s NCS The...

Rett Disorders Severity of Symptoms Survey


The Rett Disorders Alliance of the UK needs your help!

If you care about someone with Rett Syndrome and want to see improved medical/clinical services for people with Rett Disorders in the UK, please complete this survey before Monday 19th...

O’nun için Boğaz’ı yüzerek geçti:

Pazar günü İstanbul’da 28’inci kez düzenlenen Boğaziçi Kıtalararası Yüzme Yarışı’nda İngiliz yüzücü Chris Bartlett, 12 yaşındaki Türk arkadaşı Erin’in hastalığına dikkat çekmek için yüzdü.


ESKİ bir yüzücü olan...

What is a Virtual Run?

Salford Red Devils full back, Gareth O'Brien and Warrington Wolves winger, Kevin Penny are ready to run for Rett research

By Beth Johnsson

Everything’s ‘virtual’ these days: virtual workspace, virtual learning, virtual reality. In the global, 24/7...

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