Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

Ham & High : Hampstead family’s appeal

Hazel Beiny with her Grandaughter, Lotta.

When Lotta Beiny was born, everything seemed normal and she was soon crawling, toddling and doing jigsaw puzzles.

But shortly after her first birthday, she started to lose the ability to move around.


herald scotland : drug trial brings hope of cure

Romi Loffler.

A trial has been launched to establish whether a drug can reverse the symptoms of a form of autism in girls, following a breakthrough at a Scottish University.

The US trial will be the first time a drug has been given in an attempt...

Keighley News : Fundraisers plan trek for Estelle

Estelle Dickinson with Dad, Al and fellow walker, Andrew Aspinall.

The father of a girl with a rare neurological disorder will walk the length of the Leeds-Liverpool Canal to help those working to find a cure for the condition.

Alistair Dickinson,...

ITV News - Rett fundraisers stage Triathlon

'Rettathlon' organisers, Jodie Marsden and Ginny Leonard with Rugby League players, James Lowes and Jamie Jones-Buchannan.

Fundraisers have staged a triathlon in Leeds to raise money for young girls with Rett Syndrome. The rare disorder affects...

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