privacy policy
The Rett Syndrome Research Trust of the United Kingdom maintains the highest level of privacy concerning personal information. All personal information is held in compliance with the 1988 Data Protection Act.
We maintain the following policies:
- RSRT UK stores all personal information supplied by any individual who enquires about our activities, registers for email updates, makes a donation or otherwise contacts us, on password protected computers in secure premises.
- This information is only accessible to Trustees and volunteers involved in the day-to-day operations of RSRT UK.
- This information is used for internal purposes only and is never published, traded, shared or sold to other organizations.
- At times, we may use this information in order to contact you about upcoming events, campaigns, to solicit donations or to provide updates in research progress.
- You may at any time remove yourself from our mailing list by contacting us.
- Donors may request that they not be solicited in the future.
By providing us with your personal details, you consent to the collection and use of that information in accordance with the above conditions. You have the right to ask for a copy of the information we hold about you and to have any inaccuracies corrected at any time.