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The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.
Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.
Find out everything you need to know about the symptoms of Rett Syndrome, diagnosing the disorder, how to manage Rett and the current state of research.
Stay informed with practical information and resources which can help keep children and adults with Rett Syndrome as healthy as possible until we have effective treatments for the condition.
At Reverse Rett, we receive no government funding. The families, friends and communities of children with Rett syndrome have raised 99% of funds which have led to current research progress. We need your help to continue our work.
Reverse Rett works to accelerate treatments and a cure for Rett syndrome. Our small but national team manages the Rett Registry U.K., provides recruitment and support for clinical trials, raises funds for research, core funds the specialist CIPP Rett Centre and works to facilitate and accelerate the drug development process here in the UK.
