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  • Edinburgh News: Linlithgow granddad cycles 185 miles across Outer Hebrides for charity

    A caring granddad has returned from a gruelling 185-mile cycle ride across the Outer

  • Lovesurf launches ‘Hope is my Superpower’ range

    Lovesurf is an ethical clothing and accessories brand based in North Berwick, Scotland. Mary-Clare

  • Accessing UK clinical trials for children and adults with Rett Syndrome

    Registering your child or adult with Rett Syndrome on the UK Rett Syndrome Patient

  • GW Research initiates a clinical trial of cannabidiol in Rett Syndrome in May 2019

    GWP42003-P (cannabidiol) is believed to affect several pharmacological pathways and may have the potential

  • Quadrant2Design support Reverse Rett again

    Exhibition Stand Designers Quadrant2Design have chosen to support Reverse Rett by donating three pull

  • Enjoy the Great British Outdoors and help fund Rett research too!

    You may have heard us say, on more than one occasion, that the wonderful

  • MECP2 Duplication: research progress

    Amazing progress in MECP2 Duplication Syndrome research has made a cure a realistic possibility.

  • Andy Stevenson to run London Marathon for Reverse Rett

    A charity founder is set to run the London Marathon to mark his 50th

  • Sarizotan projected to be first approved treatment for Rett Syndrome

    In this update from Newron Pharmaceuticals, sponsors of the STARS study, CEO Stefan Weber,

  • ‘Cruel’ disease robbed little girl of speech and movement months after she learnt to walk and talk

    Ben Stewart is fighting to raise funds for research into Rett Syndrome, a rare

  • Mapping clinical provision for children and adults with Rett Syndrome in the UK

    Navigating the clinical care system for children and adults with Rett Syndrome in the

  • Nearly £2000 raised by family of Highgate Rett Syndrome sufferer at Beatles-themed fundraiser

    The family of a girl left “locked in” by a rare syndrome has raised