Belfast LIVE: Co Down mum on rare genetic disorder that stops daughter walking and talking


When Tara and Glenn Baine started to noticed their baby girl wasn’t reaching her expected milestones they knew something wasn’t right.

Just before Mia’s second birthday, the parents were dealt the devastating blow that she has Rett syndrome, a rare genetic disorder that affects brain development, resulting in severe mental and physical disability.

But despite never being able to learn to walk or talk, Mia, who is now eight, never stops smiling and her family have been fundraising for years to help find a cure for the condition.

On Sunday, her uncle William Baine will take on the Belfast City Half Marathon to raise money for Reverse Rett, a charity dedicated to changing the lives of children and adults with Rett Syndrome.

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