The coronavirus (COVID-19) outbreak is a time of great concern for everyone, especially if you are caring for a child or adult with Rett Syndrome.
The situation is changing daily. We are in close contact with Professor Santosh and team at the Centre for Personalised Medicine and other UK Rett clinicians and will continue to work to bring you the latest information on COVID-19 and Rett.
We have had many question about coronavirus and how it may affect people with Rett Syndrome.
As well as regularly publishing news articles in the news blog section of the website, we will publish updated information here so that it is all in one place and easy to find.
It also important that families and carers also seek advice from their local clinicians, GPs, paediatricians and other specialists to support their decisions at this difficult time.