CPMRS letter re Clinically Extremely Vulnerable status in Rett syndrome


Since the announcement of the second national U.K. lockdown, many families have contacted Reverse Rett and Rett UK regarding whether their child is considered clinically extremely vulnerable and should stay home as per government guidance on shielding and protecting people who are clinically extremely vulnerable from Covid 19. 

There is no clear evidence-based guidance on whether all patients with Rett Syndrome should be considered clinically extremely vulnerable or not. The PDF below explains the recommendations from the Centre for Personalised Medicine in Rett Syndrome (CPMRS), based on the limited information available, and consensus from multiple clinicians, researchers, and patient groups’ perspectives.

Click here to download the PDF

Please contact if you have further questions.