Empty spaces and unwanted freedom: When caring comes to an end – Special Needs Jungle

By Catriona Moore

The loss begins to hit at about 3.30pm on weekdays. That’s the time I would normally have been glancing at the clock, organising my work for her arrival home on the school bus at 4pm, making sure that I could pick it all up again later. But now I have all the time in the world.

It also hits in the morning, when we no longer have to have all her medicines and blended breakfast ready in a row of syringes by 7.30am, teeth brushed by 7.45am, dressed and positioned in her wheelchair by 8.10am, ready for the school bus at 8.30am. Now, we can sleep in if we want. Have breakfast without tube-feeding her alongside. There is so much time.

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