Published: 14/07/2020

September 18 2020: Digital Discovery Day

Our third Discovery Day will take place online on Friday 18th September, giving families, carers and professionals across the country the opportunity to come together and share up-to-date information about current Rett Syndrome research, clinical trials and healthcare provision.

Our programme of expert speakers from Kings’ College Hospital, the Alder Hey Hospital, The University of Cardiff and the Children’s Hospital in Edinburgh, will present key up-to-date information across the above fields, and take questions from attendees.

In the afternoon, several discussion groups will also be led by field experts, covering various topics including an educational perspective on Rett Syndrome, assertiveness training, clinical trial expectations and the role of grandparents.

There will be opportunities for Q&A with our speakers as well as informal virtual ‘coffee breaks’ to chat with other families.

The day is absolutely FREE to join and we welcome families, carers and professionals from all over the world.

Click here for full details and to book your free place(s)

Please contact with any queries.