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30/09/2019

Rett Syndrome Awareness Month-Think global, act local

By Andy Stevenson

Whilst every month is Rett Syndrome Awareness month at Reverse Rett, October is always a reason for families like ours us to relax a little bit, as for once we have a perfect excuse to spam friends and family with information about our cause!

But Rett Syndrome Awareness month isn’t just about information; it’s also about action. This October, we invite you to take action however you can, not just telling people about Rett Syndrome but demonstrating your will to do something about it. Here are some ways to get involved:

Reverse Rett Global Run/Walk

Join teams across the UK and around the globe taking part in the 4th Annual Reverse Rett Global Run. It’s £15 to enter, or £10 each for a team of ten. You can do the 5K however you choose, walking, running, cycling or even swimming and on any day in October and receive a bespoke wooden medal for your efforts. Don’t forget to send us your pictures to share on social media.

Here are some of the locations for walks taking place throughout the month:

Alexandra Park, Manchester, UK, Sunday October 27th 2019 Contact: Andy Stevenson – andy@reverserett.org.uk

Nonsuch Park, Sutton, Surrey, UK, Sunday October 27th 2019 Contact: Beth Johnsson – beth@reverserett.org.uk

Treecraft Woodwork, Dornoch, UK October 26th 2019 Contact: Stephanie Wood – steph@treecraft-woodwork.com

Team Sienna – Trythall School, New Mill, Cornwall, UK, Sunday 13th October 2019 Contact: Sabrina Peake – binaroma@hotmail.com

Saffron Rose Charitable Trust – Gibraltar, UK, Sunday 20th October 2019 Contact: Clare Francis – clarefrancis81@yahoo.co.uk

Cure Rett Brazil, Rio de Janeiro, Brazil, 27th October 2019 Contact: Luiz Chaves – luizchaves@rlbusinessbrasil.com

Team Abigail – Canberra, Australia, any day in October Contact: Mary Lishomwa – maryepritchard@gmail.com

You can also set up your own walk/run with friends and family in your local park or anywhere else. Find out more and enter here.

Findacure Manchester Rare Disease Showcase October 8th, 2019, Bridgwater Hall, Lower Mosley St, 10-4.30.  Join us at this day-long conference celebrating rare disease developments in Manchester and North West England.

Tickets still available HERE

Share Reverse Rett social media awareness posts on Facebook, Twitter and Instagram.  Don’t forget to add your own personal comment on the post which makes people much more likely to read and learn about #RettSyndrome

Get your new style #ReverseRett t-shirt by setting up a Just Giving page. There are so many reasons to fundraise this October, #SoberOctober, #RettSyndromeAwareness month itself, birthdays, holidays, babies, weddings, and a whole bunch of crazy challenges. Find lots of fundraising ideas by downloading our action pack here (scroll down for downloadable resources) or fill in the form on the page and we’ll put a hard copy in the post.

Finally, for any families in the North West and beyond, do let us know if you’d like to join us for our walk in Manchester. We’ll be heading back to our house after the walk for one of my vegan curries, all welcome.

As my favourite 80s band, REM used to say, ‘think global, act local.’ If enough of us do it, we will make our impact on #RettSyndrome, for now and for the future, for the people we love.