Support us 

There are countless ways to raise money and help speed treatments and a cure for Rett Syndrome. Whoever you are, whatever you do, there is something you can do to help.

Do your own thing

Raising money for the first time can seem daunting but it doesn’t have to be. Choose a challenge that will capture people’s imagination, then tell your story. People give to people and are moved by the personal reasons behind your challenge. So make it personal!

Holding an event can also be a fantastic way to raise money whilst having a great time. Quiz nights, dinner parties, cheese and wine evenings or if you have a strong network, a ball or formal dinner.

Join a team

Families of people with Rett Syndrome, their friends and networks are the reason Rett research is making such great progress. Over the past few years, many parents of children and adults with Rett, have called on their friends to join them in a local event, such as the Great Manchester Run and made it into a team challenge.

Fundraising toolkit

Here you will find all the resources you need to get your fundraising underway. If you don’t have access to a printer, then contact us and we’ll get whatever you need posted out to you: Action Pack, Sponsor Form, Gift Aid Form, Postal Return Form, Leaflet, Poster.

Inspire others and spread the word

Curing a rare disease is a real challenge. Most people have never heard of Rett Syndrome, so it’s up to those who have to shout it from the rooftops. Think about who you know and who could help. Enquire if your work place has a matched funding scheme or choose a ‘Charity of the Year.’ Ask your friends about the support their employers give to charities and put Reverse Rett into their minds.

Schools usually select a charity to support so make contact with your local school. Perhaps you know a celebrity who could champion our cause and raise the profile of Rett Syndrome? We need you to tell people about how we’re #MakingChangeHappen for people with Rett.

Fundraising Toolkit

Click the links below to download what you need to get your fundraising underway.
If you don’t have a printer contact us and we can post them out to you.

If you’d like to discuss ideas for events or find out how we can help, please email our Events and Campaigns Co-ordinator, Beth Johnsson at

Latest news

  • Sing-A-Long with The Beatles: 10th February 2019

    Sing-A-Long with The Beatles: 10th February 2019

    A Sing-A-Long-With the Beatles charity event will take place at Muswell Hill & Highgate
  • Cambridge Half Marathon: 3rd March 2019

    Cambridge Half Marathon: 3rd March 2019

    Join Team Reverse Rett in the Saucony Cambridge Half Marathon on 3rd March 2019.
  • Race Night – Edinburgh: 30th March 2019

    Race Night – Edinburgh: 30th March 2019

    There will be a Race Night in honour of Ellie on Saturday 30th March