"Three good friends of mine came up with the idea of organising a ball to raise funds for Reverse Rett, as they all had young children of similar ages to Eliza and they knew what effect the diagnosis had on us as a family. As we had not long found out that Eliza had Rett Syndrome, I was still finding it hard to talk to anyone about her without crying, and the thought of opening up to so many people about her condition and asking for auction prizes, organising an event and trying to sell tickets was pretty daunting. As it turned out, I needn't have worried, as our whole community came together to help in various ways, the tickets sold out within three hours, I even managed to give a speech, and it turned out to be the most wonderful evening that people are still taking about two years later. We raised over £30,000, far exceeding our expectations. But just as importantly, it brought many friends together and made us realise that we are not alone in wanting the best life for our little girl." -Catherine McKinney, mum to Eliza
Progress in Rett Syndrome research has been fast and it's largely down to the efforts of affected families who have raised the majority of the funds to drive the science forward.
Hosting an event is one of the most effective ways of raising money.
Anyone can start an event - parents, grandparents, brothers, sisters, aunts, uncles and friends. An event can be whatever you envision - a picnic in a park, a happy hour at a bar, pub quiz or gala dinner. A common misperception is that you need to have wealthy connections to hold an event. This isn’t the case at all. Every event and every contribution matters.
Whether you have an idea for your event, or just want to do some brainstorming about what’s possible for you, email Beth today or give her a call on 020 8661 5901.
Beth is parent to a daughter with Rett Syndrome as well as an experienced events co-ordinator. Beth can encourage and support any ideas you have as well as offering our own tried and tested suggestions if you’re not sure which way to go.
“Planning an event can sound daunting, but it doesn’t need to be. Our support can be as ‘hands-on’ (or off!) as you wish, and we will be more than happy to come and offer our help in person both in the lead up to your event and on the day/night itself. We hope that with our focused help, it will become something which families, friends and fundraisers across the country will embrace, enjoy and excel at.'
Why not be inspired by others who have pledged to host for a cure already - they could be you!
Hazel Beiny, grandmother to Lotta, holding a special lunch event for her friends, featuring celebrity chef Lisa Roukin's culinary skills and masterclass.
Gill Prett, grandma to Hannah, dedicating her annual coffee morning event for friends and neighbours, to Roadmap to a Cure.
Colin Gordon, uncle to Romi, putting on his second rock and roll gig in Edinburgh on 6th May 2018, following the success of this year's event.
Kate Quigley, family friend of Amber, back by popular demand hosting her second pub quiz night after the success of the first in autumn 2016.
Kev Austin, holding five 'Saturday Session' gigs throughout 2017 at his local pub, in memory of Chelsey who sadly passed away last year.
Emma-Louise, mum to Ellie, holding a cheese and wine night in September, also in memory of her lovely mum who was a keen fundraiser for Reverse Rett.