#ResearchAtRisk questions answered.
Not all charities were eligible for the government’s emergency funding in 2020 and Reverse Rett was one of them.
The funding was focused on charities who were providing frontline support in the pandemic, which does not include most medical research charities.
Like many other charities, we are using the Furlough scheme as much as we can, but we have charitable activities which need to continue during the pandemic, which don’t count as ‘frontline’ services.
- Reverse Rett provides 100% funding for the UK’s only clinical treatment and research centre for Rett Syndrome, the CPMRS, based at King’s College Hospital in London.
- Reverse Rett is responsible for disseminating research findings from the Centre, giving local clinicians and affected families access to emerging healthcare information.
- Reverse Rett supports international Rett Syndrome and MECP2 Duplication Syndrome research projects through our partnership with the US Rett Syndrome Research Trust.
- Reverse Rett runs the UK’s only national Rett Syndrome Patient Registry.
- Reverse Rett provides clinical trial support services for industry partners and families, enabling effective recruitment and participation in UK Rett Syndrome trials.
- Reverse Rett collaborates with other UK patient organisations to improve the health and lives of people with Rett Syndrome in the UK more broadly.
We need to keep those activities going and for that we need our people.
Neither would using the Furlough scheme to the max make up the significant shortfall in funding we experienced last year. (-£244,000 less than in 2019)
The cost of the research we fund (typically £600K per year) far outstrips, government provision through the Job Retention Scheme.
The cost of the research we fund, far outstrips the government’s emergency funding for charities who are not providing frontline services. (£0).
We need our people at work, trying to make up that difference.
You can still help with the AMRC #ResearchAtRisk campaign by sending a letter to Boris Johnson here