• Leicestershire Live: Girl, 10, with rare 1 in 12,000 condition ‘making the most of life’

    Georgia Wainwright is 10 years old and has been diagnosed with an extremely rare

  • Coronavirus: How we can help

    Living with Rett Syndrome at any time is challenging. Coronavirus is making life much

  • Rett Syndrome and access to critical care during the COVID-19 crisis

    Since Reverse Rett published this article on 24th March 2020, NICE have made some

  • Disability Discrimination against adults with disabilities in the COVID-19 outbreak

    On March 22nd 2020, NICE issued COVID-19 Rapid Guideline: Critical Care NICE Guideline [NG159]  The stated

  • Hospital Bag

    Like you, we are worried about our loved ones with Rett Syndrome, working hard

  • Reverse Rett funds new Centre for Personalised Medicine in Rett Syndrome at King’s College Hospital

    The recent outbreak of Coronavirus (COVID-19) has been such a difficult time for families

  • Updated advice for families of people with Rett Syndrome in the UK re Coronavirus

    Please note:  This information is subject to change as national government guidance evolves. Individuals

  • Reverse Rett Statement on COVID-19 and community fundraising events (16.03.2020)

    Reverse Rett was founded and is run by the families of children and adults

  • Folkestone Herald: Dad’s 1800km challenge in aid of fight against Rett Syndrome

    In March last year Folkestone dad Timothy Jones set himself the challenge of running

  • Cumbria Crack: Cumbrian businesses rally behind Rett Syndrome charity ball

    More than twenty Cumbrian businesses are throwing their support behind a special charity event

  • Dornoch mother’s 50 day 5k challenge

    A Sutherland mother is taking part in a challenge to raise money for Reverse

  • Martyna, shining a light on International Women’s Day

    Eleven-year old Martyna and her friends Juliette and Oliwia have asked their school, Chorlton