Published: 23/06/2021

Bitesize Recordings

Over the past two years our Bitesize sessions have covered a range of topics, drawing on the expertise of clinicians, researchers and parents and providing a wealth of healthcare information to attendees.

Each one of these sessions is now available to watch in full on our YouTube channel and/or via the links below.

Please remember to subscribe and feel free to pass on any feedback via [email protected] to help inform our future sessions.

Professor Santosh: Covid19 and Rett Syndrome: What We Know Now

Dr Ram Kumar: Spasticity and Movement Disorders in Rett Syndrome

Dr Chishti and Dr Basheer: Common Health Issues in Rett Syndrome

Dr Gael Gordon: Eye-Care and Vision in Rett Syndrome

Expert Parent-Panel: Scoliosis Surgery

Expert Parent-Panel: Gastrostomies

Expert Parent-Panel: Chest Infections in Rett Syndrome

Expert Parent-Panel: Reflux and related gastrointestinal problems

Andy Stevenson and Lluis Mathers: Participating in Clinical Research

Expert Parent-Panel: taking part in Clinical Research

Expert Parent-Panel: Nutrition and Blended Diet

Dr Ruksana Ahmed: Anxiety in Rett Syndrome

Expert Parent-Panel: Transition into Adulthood: Navigating the Journey

Expert Parent-Panel: Transition into Adulthood and Funding

Physiotherapy and Rett Syndrome

Dr Stuart Cobb: Genetic Therapies in Rett Syndrome

Good stuff for Disabled Children/Adults: what’s out there?

Expert parent-panel: Rett Syndrome and Puberty

Rett Registry UK Workshop

Dr Sharma: Respiratory Issues in Rett Syndrome

Dr Rebecca Winderman: Gastrointestinal issues and Nutrition