COVID-19 and Rett

The coronavirus (COVID-19) outbreak continues to be a time of great difficulty for everyone, especially if you are caring for a child or adult with Rett Syndrome.

We continue to be in close contact with Professor Santosh and team at the Centre for Personalised Medicine and other UK Rett clinicians and will continue to work to bring you the latest information on COVID-19 and Rett.

On this page you will find news articles, updates and resources relating to Covid 19 and people with Rett Syndrome.

If you have a query which has not been addressed, you can submit a question via the form at the bottom of the page. We will endeavour to answer you as quickly as possible.

COVID-19 & Rett FAQ

Update 25th February 2021

Unpaid carers over 16 are now being vaccinated in Group 6. See the full priority list here on page 8.

Carers in receipt of Carers Allowance in England can also book an appointment via the NHS vaccine booking page.

Unpaid carer status so far has been based on the carer being in receipt of Carer’s Allowance or being registered as a carer with the GP but you are still entitled to it, even if you don’t get Carer’s Allowance.

The organisation Contact has produced a template letter to help carers struggling to get the COVID vaccine | Contact

For more information and any advice, please don’t hesitate to get in touch.

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