Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

Rare Disease UK: my sister, Rett syndrome, and hope

Sometimes I sit around and think of things my sister has never done.

Amber has never chewed a piece of gum. I hope she has never experienced heartbreak. She has never held a cold beer up to her lips on a hot day and said, ‘ahh.’ She has never sat a...

What ‘awareness’ means to us

By Beth Johnsson

It’s the last day of October. Which means it's not only Halloween but also, as you may have noticed, the end of International Rett Syndrome Awareness Month. As the month draws to a close, we can't help reflecting on...

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