Here you'll find all the latest information on Rett Syndrome research, Reverse Rett and other news that impacts our community.

Just as they are? A Mother’s perspective

By Emily Marsden

"I wouldn't change her for anything"

Since Daisy was diagnosed with Rett Syndrome I have begun to notice a similar phrase or sentiment cropping up amongst parents of other girls with Rett or equally complex disorders. I recently...

Romi’s concert for Rett

After the success of last year's Romi's Concert for Rett, committed Reverse Rett fundraiser and Romi's Uncle, Colin Gordon, decided to do it all over again with a little help from his friends.

The gig was again held at the Caves in Edinburgh and...

Meet a leading Rett researcher



Ralph Hector is a geneticist who is working hard in search of our cure. Andy recently caught up with Ralph to find out what he has been working on and to show you the impact your support is making. 


Andy: Ralph thanks for making time to...

UK Clinical Trial update


March 2018

There had never been a clinical trial of a potential treatment for Rett Syndrome in the UK until the Sarizotan trial started at the Clinical Research Facility, King’s College Hospital in London last year.

The drug is being trialled...

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