Dear Friends


Huge appreciation to all who attended and supported the 9th Annual Reverse Rett London Gala which was held at Church House, Westminster on November 9th 2018.


A wonderful and inspiring night was had by all. We are delighted to announce that...

Update on Cannabinoids from Dr Ram Kumar

Dr Ram Kumar at a recent meeting of the Rett Disorders Working Group

Following the heart-breaking case of Billy Caldwell, there has been widespread media coverage of cannabinoid medicines and their potential to treat epilepsy.

None of this was...

How to make the most of Amazon Smile

By Andy Stevenson


AmazonSmile launched in the UK in November 2017. Many of you have already signed up and chosen Reverse Rett as your benefitting charity, we recently had our first payment from them. It's a great way to raise money for Rett...

Calling all grandparents!

Hazel with her granddaughter, Lotta

By Hazel Beiny

It was 7 years ago when my beautiful granddaughter Lotta was diagnosed with Rett Syndrome. I know many of you will have had the same experience and will have benefited from the support and advice...

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