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UK Rett Disorders Working Group update

By Rachael Stevenson

The UK Rett Disorders Working Group met on the 6th of December 2017 in Covent Garden, London. The group comprised of the following individuals:

Hilary Truss, Rachael Stevenson, Judith Sheppard, John Sharpe,  Becky Jenner (Rett...

Awakening

 

Guest blog post by Gael Gordon PhD.

This week for the first time, I appeared in the Sun.  I would like to make it clear that this was never on my bucket-list but getting the news about Rett Syndrome sometimes means doing stuff like this.  The...

What’s breathing got to do with it?

By  Dr. J Singh, MSc, PhD

My lungs felt if they were on fire and I could not breathe Daddy.’  This is what my daughter told me one day as she was playing tag in the park during a cold winter’s day. Breathing is fundamental to all life processes;...

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