Guest blog post by Gael Gordon PhD.

This week for the first time, I appeared in the Sun.  I would like to make it clear that this was never on my bucket-list but getting the news about Rett Syndrome sometimes means doing stuff like this.  The...

What’s breathing got to do with it?

By  Dr. J Singh, MSc, PhD

My lungs felt if they were on fire and I could not breathe Daddy.’  This is what my daughter told me one day as she was playing tag in the park during a cold winter’s day. Breathing is fundamental to all life processes;...

Professors Bird and Zoghbi win the Shaw Prize

Many congratulations to Professors Adrian Bird and Huda Zoghbi on jointly winning the Shaw Prize for their amazing and ultimately life-changing work for people with Rett Syndrome.

As families of people affected with Rett, we are so lucky to have...

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