rett in the news

Rare Disease Day: Only you

By Rachael Stevenson

It’s International Rare Disease Day today and the theme this year is research. Research is important to anyone affected by a rare disease and anyone affected knows why. Only research will ultimately bring about treatments and...

Thank you and Happy New Year!


As we come to the end of 2017, we’d like to thank all Reverse Rett supporters and fundraisers.

Through your efforts, there have been a number of highlights throughout the year. We’ve picked a few moments we’ll never forget to share with you and...

Life, Rett, Etc: A Matter of Life and Death

By Rachael Stevenson

A lot of things scare me about Rett Syndrome but my number one fear is aspiration pneumonia.

This fear is not ungrounded. Lower respiratory tract infection is the most common cause of death in Rett Syndrome, followed by...

8th Reverse Rett London Gala


Our heartfelt appreciation goes to all who supported the Reverse Rett London Gala which was held at Church House, Westminster last Friday, November 3rd 2017.

We were overwhelmed by your generosity and willingness to help us give girls and women...

Jumpstart: Not so secret garden

Elly Douglas-Hamilton’s family has run Archerfield since the 1960s. Now, the estate’s walled garden is helping the business to diversify into areas including brewing, events and retail, as Peter Ranscombe reports.

It’s not often that fairies crop...

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