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Gloucestershire Live: For Holly: FC Lakeside chairman to run half marathon

The chairman of a football club will be putting his fitness to the test to raise vital funds for a girl who cannot walk or talk.

Holly Boyes was diagnosed with Rett Syndrome when she was just two years old.

Rett Syndrome is a rare genetic disorder that affects brain development, resulting in severe mental and physical disability.

This means that, while Holly used to be able to say a few words, feed herself and play with her toys, slowly over time she has lost the use of her hands, the ability to feed herself and eat like any other girl her age.

Holly, who will turn nine on October 6 and attends Bettridge School in Cheltenham, now has a feeding tube, suffers from epilepsy and can’t walk, talk or do any of the things she most enjoyed.

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