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  • Katie’s grandad releases his first children’s book

    Christian Lockwood loved making up stories for his children when they were growing up

  • Sutton & Croydon Guardian: Sutton dad takes on five-a-day challenge for Rett Syndrome

    A father from Sutton is on a mission to help find a cure for

  • East Lothian Courier: Prestonpans musician donates his talents to help fight Rett Syndrome

    A GUITARIST from Prestonpans has shared his musical skills with others to help fund

  • Help AMRC #ResearchAtRisk

    Please help today as medical research affects every single one of us! The Association

  • Edinburgh Evening News: Father-of four to row across the Atlantic to raise money for the charity working to find a cure for his daughter’s disabling genetic disorder

    Ross McKinney, a father-of-four from North Berwick is planning to row across the Atlantic

  • What a year! Thank you for standing with us

    By Rachael Stevenson 2020 was the year no one could plan for. The virus

  • Vitamin D and Rett Syndrome

    Today a rapid guideline on Vitamin D and Covid has been produced by NICE-the

  • Ham & High: ‘That’s what Christmas is all about’: Highgate home’s festive lights bring community together

    A dazzling display of Christmas lights outside a Highgate home is once again brightening

  • Less BUT More, dare to dream…

    By Andy Stevenson I’ll be honest, after the year we’ve all had I thought

  • Letter to Matt Hancock MP re Covid 19 vaccine priority and learning disabled deaths

    A consortium of UK patient groups including Reverse Rett, Rett UK, Sense, BDFA and

  • At last…..We have a boat

    By Ross McKinney We haven’t been able to do much rowing this year due

  • Daily Record: Former Kilmarnock star Mark Reilly embarks on two gruelling charity missions in aid of his brave wee girl

    Mark Reilly suffered through the agony of 18 pre-seasons as a player but the