• Rare Disease Day: Why it matters and what you can do to help.

    This year, Rare Disease Day will take place on February 28th.  Rare Disease Day

  • I am rare. I am registered.

    Rare Disease Day 2022 will be held on February 28th. At Reverse Rett, this

  • Where There’s A Will . . .

    Everyone needs a Will. Whatever your age, whatever your health, whatever your wealth: your

  • Back in North Berwick!

    After two years away from Scotland, we are delighted to be returning to North

  • BBC NEWS: Waves roared like jet engines as we rowed the Atlantic

    A team of Scottish rowers said they battled waves as high as hills that

  • What can you do?

    January is always a time for looking forward and setting resolutions for the year

  • Understanding Health Inequalities for children and adults with Rett from minority backgrounds

    Everyone who cares about a child or adult with Rett Syndrome knows all too

  • Help without moving a muscle

    Whilst we’re excited to see what fundraising events and challenges this year holds, we’re

  • The Scotsman: East Lothian men spend Christmas and New Year rowing across the Atlantic as only Scottish team in Talisker Atlantic challenge

    Five East Lothian men will be spending the festive season rowing across the Atlantic

  • The New Rett Registry UK app is up and running

    We are delighted to announce the launch of the new Rett Registry UK app.

  • Why we love the Big Give Christmas Challenge

    By Andy Stevenson We love the Big Give Christmas Challenge. Alongside the London Gala,

  • Countdown to Race day

    By Ross McKinney The countdown is well and truly on to the start of