• ‘Stop the Creep’ campaign gains momentum, can you help?

    By Andy Stevenson Thanks to Elsie, who was diagnosed with Rett Syndrome in November

  • Whitby Sea Foods choose Reverse Rett as their first Charity of the Year

    We are delighted to announce that Whitby Seafoods have chosen Reverse Rett as their

  • Newron announce Rare Disease Paediatric Designation from the FDA

    Newron, the pharmaceutical company sponsoring the clinical trial of Sarizotan for breathing irregularities in

  • From the Bottom of our Hearts

    Dear Friends, From the bottom of our hearts, thank you all for everything you

  • Autonomic dysfunction and sudden death in Rett Syndrome

    Congratulations to Professor Santosh and colleagues at the Department of Child and Adolescent Psychiatry,

  • Reverse Rett launches #StopTheCreep Campaign

    Reverse Rett has partnered with creative agency Core Marketing Partners to help drive awareness

  • Thoughts on the C-word

    By Rachael Stevenson, Co-Founder, Executive Director, Reverse Rett During #Rett Syndrome #Awareness month, some

  • Leighton Buzzard Online: Halloween fundraiser for brave Pitstone girl who was robbed of her ability to speak by Rett Syndrome

    A magnificent Halloween display which gets bigger and better each year is inviting trick-or-treaters

  • My Arctic Survival Challenge for Reverse Rett

    By Frank Synek My name is Frank and I am planning a one of

  • Nottinghamshire LIVE: Boxers get in the ring to raise awareness of Rett Syndrome

    Nottingham’s rising stars of boxing will get in the ring this weekend to raise

  • The Northern Times: Family to join in walk initiative

    A fancy dress fun walk is being held in Dornoch to raise money for

  • Belfast LIVE: Co Down mum on rare genetic disorder that stops daughter walking and talking

    When Tara and Glenn Baine started to noticed their baby girl wasn’t reaching her