• Sarizotan projected to be first approved treatment for Rett Syndrome

    In this update from Newron Pharmaceuticals, sponsors of the STARS study, CEO Stefan Weber,

  • ‘Cruel’ disease robbed little girl of speech and movement months after she learnt to walk and talk

    Ben Stewart is fighting to raise funds for research into Rett Syndrome, a rare

  • Mapping clinical provision for children and adults with Rett Syndrome in the UK

    Navigating the clinical care system for children and adults with Rett Syndrome in the

  • Nearly £2000 raised by family of Highgate Rett Syndrome sufferer at Beatles-themed fundraiser

    The family of a girl left “locked in” by a rare syndrome has raised

  • One Family’s Fight

    The debacle of Altrincham’s 24M Health and Wellbeing Centre is well known – but

  • Work experience at Reverse Rett

    This week at Reverse Rett, we have been fortunate to be able to welcome

  • Dad’s marathon a month for Rett charity

    Jonathan Paton’s daughter, Abby was diagnosed with Rett Syndrome in September last year. Despite