Home

Romi’s concert for Rett

After the success of last year's Romi's Concert for Rett, committed Reverse Rett fundraiser and Romi's Uncle, Colin Gordon, decided to do it all over again with a little help from his friends.

The gig was again held at the Caves in Edinburgh and another great night of music was enjoyed. The three bands put on a fantastic show with Colin's band, Rocka Hilbillies being joined on stage by the Chief Exec of the City of Edinburgh Council, Andrew Kerr who described performing as his 'most nerve wracking public appearance to date', quite an admission from someone in his position.

The audience were also given an update on Rett research by Dr Stuart Cobb and Dr Ralph Hector who are working on treatments and a cure for Rett Syndrome at Edinburgh University.

Colin has been supporting Reverse Rett for a number of years and we were delighted that he decided to hold Romi's concert again.

Colin says, 'I became aware of Reverse Rett after my niece Romi was diagnosed with Rett Syndrome in 2009 and shortly after my brother in law, Gunter, recruited our family for some reasonably challenging sponsored runs. It seemed to me that Reverse Rett was a very worthwhile cause to support not only because I knew a family member who struggled daily with the condition but also because the charity is directly funding research which offers hope for a permanent cure in the near future. Given that the impact of this work will be life changing for thousands of people, I am committed to supporting the charity for as long as it takes to find a cure.'

'I'd like to thank Norman and the staff of the Caves, Vodafone, CEC Chief Exec Andrew Kerr (speaker and guest singer), Dr Ralph Hector and Dr Stuart Cobb, Scott Basham (MC), Mark Holloway (photographer), Tom Thorburn (video), Graeme Martyn and my wife, Sam, for her patience and support especially during the organisational stage.

A huge thanks also to the bands - the Electrical Melting Company, Rocka Hillbillies and Cow Cow Boogie and to all the people who attended or made a donation in support of Romi on my Just Giving page'.

As Rett research continues to move forward we are truly thankful for the support of Colin, his family and friends as we continue to work towards our goal of a world where Rett Syndrome no longer exists.

You can support Colin's efforts by donating on his Just Giving page here