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Telegraph & Argus: Bradford author raises the profile of Rett Syndrome

'I hope everybody can learn that life is for living. We think we will do this in future and sometimes the future isn't guaranteed.'

It is a decade since Sara Meredith lost her beautiful daughter, Olivia, to the rare condition Rett Syndrome. Olivia was nine and a half when she died.

According to NHS UK, around one in 12,000 girls are born with the rare genetic disorder affecting brain development and resulting in severe mental and physical disability.

Although Olivia was born with the condition it didn't manifest until later. She was four when she was officially diagnosed.

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