Patient Registry

Reverse Rett holds the only current and accurate registry of patients with Rett Syndrome in the UK.

The registry is a critical component of our work to deliver treatment for Rett Syndrome in the UK. It enables us to contact the families of registered patients directly as and when the need arises re upcoming clinical trials or for help in demonstrating unmet need in terms of medical and clinical provision in the UK.

If you love or care for someone with Rett Syndrome, please register them today. It only takes minutes to register. The information submitted is completely confidential. Please note that if you live in the EU and are interested in UK based or other European clinical trials, you can also register.

Reverse Rett Registry

Patient Information

 

Your Details

 

Contact Details


 

MECP2 test?

YesNoNot sure
 

Positive or negative?

PositiveNegativeNot sure
 

Specific mutation*


 

If 'Other' what is the specific mutation?