The registry is a critical component of our work to deliver treatment for Rett Syndrome in the UK. It enables us to contact the families of registered patients directly as and when the need arises re upcoming clinical trials or for help in demonstrating unmet need in terms of medical and clinical provision in the UK.
If you love or care for someone with Rett Syndrome, please register them today. It only takes minutes to register. The information submitted is completely confidential. Please note that if you live in the EU and are interested in UK based or other European clinical trials, you can also register.