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Rett Registry UK

Rett Registry UK is the most comprehensive registry of children, young people and adults with Rett Syndrome in the UK, built and maintained by Reverse Rett.

But the app isn’t just a registry – it’s a comprehensive suite of features for the parents and carers of people with Rett Syndrome to reduce admin, link to useful resources, and connect up to the wider community.

We hope these features will make life so much easier for those who use it.

The Rett Registry UK is for anyone with Rett Syndrome or a related disorder in the U.K regardless of nationality or immigration status.

If you care for someone with Rett Syndrome and you live in a country with no registry, you are welcome to register here.