Reverse Rett Announces Andy Stevenson as New CEO

We are pleased to announce that Andy Stevenson will become CEO of Reverse Rett from September 2026, leading the organisation into its next phase as treatments and disease-modifying approaches move closer to reality for people with Rett syndrome.

Andy has been part of Reverse Rett since its founding and has played an important role in the organisation’s growth, strategy, and development as Head of Community Fundraising over many years. As Deputy CEO, he has already been supporting implementation of the charity’s long-term strategy and future direction.

This transition reflects a natural evolution for Reverse Rett as the organisation increasingly focuses on treatment access, evidence generation, NHS engagement, and improving real-world outcomes for people with Rett syndrome across the UK.

John H. Sharpe, Chair of Trustees, said:

“Andy brings deep knowledge of the Rett community, the organisation, and the challenges and opportunities ahead.

The Board is confident that Reverse Rett is entering this next phase with strong leadership, clear strategic direction, and continued focus on improving outcomes for people with Rett syndrome and their families.”

Rachael Stevenson said:

“I’m incredibly proud of what we have built together over the last 16 years and confident that Reverse Rett is in a strong position for the future.

As the field continues to evolve, the organisation is well placed to help ensure that scientific progress translates into meaningful real-world impact for families.”

Andy Stevenson said:

“It’s a privilege to take on this role and continue the work of Reverse Rett at such an important moment for the Rett community.

Our focus remains clear: ensuring that people with Rett syndrome and their families benefit from the progress now happening across research, treatments, and clinical care.”

Rachael Stevenson will continue to support Reverse Rett in a strategic advisory capacity, focused on long-term strategy, integration, and impact.