“I realised many years ago that if we were ever going to make real progress in Rett Syndrome research it would have to be led by families affected by Rett Syndrome. Almost all of the money raised for Reverse Rett has come from parents, their families, friends and connections. We have made huge progress since the reversal experiments in 2007; this was the breakthrough that led me to start taking on challenges to speed up the research. With clinical trials underway it really is a matter of time before treatments are available. We need you to join us, to help make this possibility a reality. What can you do? Who do you know that can help? Please get in touch anytime to brainstorm ideas of how you can get involved.”
Andy Stevenson
Co-founder, Trustee, Fundraising Manager