Taysha survey data presented in posters at IRSF Scientific Conference, Nashville in April 2022 


Last year we worked in partnership with Taysha Gene Therapies and other Rett patient organisations worldwide to share the Taysha  Survey.  

The survey asked families to share their experiences of Rett Syndrome, both in terms of the carer’s perspective and insights into the patient’s perspective especially as regards to emerging gene therapies.  

Data from this survey were shared at the recent International Rett Syndrome Foundation Scientific Meeting in Nashville in April 2022. 

 We’re pleased to be able to share them with you here as well Taysha Rett Patient Experience Clinical Trial Development 2022 and Taysha Rett Syndrome in Adulthood Caregiver Perspective Poster 2022