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  • Charities urged to check fundraisers’ credentials due to Pudsey scammer

    Charities urged to check fundraisers’ credentials due to Pudsey scammer

    Charities have been in the news this week, due to the unscrupulous acts of
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  • Taysha receives go-ahead for early dose escalation in adolescent and adult Rett syndrome gene therapy trial 

    Taysha receives go-ahead for early dose escalation in adolescent and adult Rett syndrome gene therapy trial 

    Yesterday, 19th March 2024, Taysha Gene Therapies published a press release with an update
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  • Scoliosis in Rett syndrome: Repeat cancellations of essential operations in UK as a safeguarding concern.

    Scoliosis in Rett syndrome: Repeat cancellations of essential operations in UK as a safeguarding concern.

    This article may be a difficult read for young or newly diagnosed families but
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