This work which is being carried out by researchers at King’s College London is likely to provide new insights into how individuals and subsets of patients with Rett should be treated.
Part of the TRIAL project includes the Rett Evaluation of Symptoms and Treatment (REST) questionnaire. The REST questionnaire is a simple online questionnaire which has been developed specifically for patients with Rett through a collaboration between King’s/SLAM NHS, HealthTrackerTM and Reverse Rett.
The REST Questionnaire allows deep profiling of each individual patient, longitudinal tracking of patients’ physiology and symptoms through time and enables a thorough understanding of each patient’s symptoms.
Alongside, the use of biometric guided therapy using wearable technology, the TRIAL Project combines to create a rich dataset that can transform management, treatment and experimental medicine for patients with Rett Syndrome.
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