Is it safe for my child with Rett Syndrome and his/her siblings to return to school?

Updated 08.09.20

Current government advice is that shielding for vulnerable people is now paused and therefore all children should return to education settings.

Clinically extremely vulnerable children should attend education settings in line with the wider guidance on reopening of schools and guidance for full opening: special schools and other specialist settings.

Siblings of vulnerable people should also be returning to school.

At Reverse Rett, we continue to urge families to exercise caution and to continue to follow social distancing guidance, hand-washing and mask-wearing as far as possible.

Practical tips for keeping your person with Rett Syndrome as safe as possible may include:

  1. Take daily observations (temperature, blood pressure, heart rate, oxygen saturation). You may not have all of this equipment, but the more you can do the better. If there are any concerning readings, or if there is a marked change from her normal readings, please do inform a medical professional.
  2. Ensure that you monitor the person’s symptoms closely. If they develop a fever or dry cough, please do inform a medical professional. Moreover, if they develop any new respiratory symptoms/you see a change in their behaviour that concerns you, please do inform a medical professional.

3. Continue regular hand-washing and ensure that all family members wash hands thoroughly as soon as they re-enter the home from education or work settings.

4. If your child/adult with Rett Syndrome will tolerate mask-wearing then do use one; if not, try to ensure that the adults who interact with him/her wear masks and socially distance whenever possible.

5. Continue to keep social interactions as limited as possible and maintain ‘bubbles’.