If you already have carers coming into your home, it’s likely that this is because it is essential for your person’s care and well-being that they and you, their family, have this support.
The current situation is more stressful even than your normal daily life, because you are more isolated and the person with Rett Syndrome is not able to access their usual activities; school, college, respite, day centre etc.
The situation has been going on for many weeks and you will need to stay strong both physically and emotionally as we move into the summer. It is also possible that you could become ill yourself, so having a back up plan, including other carers who are able to meet your person’s needs, is important.
Here are some rules you can put in place to minimise the risk of spreading the infection:
1. Don’t allow carers/nurses to come into your home if they have any signs of a cold or cough type illness, no matter how minor.
2. Display this poster to put on your front door to advise anyone entering your home of the precautions they need to take.
3. Carers should leave their coat in their car or remove it at the door. No bags or phones should enter your living area.
4. Carers should wash their hands and change into clean clothes for the shift, leaving their own clothes in a bag in the hallway.
4. Use antibacterial wipes to wipe down any phones, glasses or other items which are essential during their shift.
5. Ask your care staff to have limited close 1:1 contact with your child wherever possible, i.e. No kisses or cuddles or talking to them up close by their face unless vital 🙁
6. Ensure that carers are using the proper hand washing technique. Show them this video. Have soap and paper towels visible and available at all sinks. Remind them to wash their hands very often by washing your own and passing them the soap.