What do Valentine’s Day, Mother’s Day, Rare Disease Day have in common? 

Followers of the Reverse Rett Facebook page might think that celebrating these days is just a way for us to connect with the community and provide opportunities for families to show their pride in their loved ones. We also use these moments as touch points with families, to check whether their loved ones are registered on the Rett Registry UK and to support them with registering if they are not. 

Having as many UK patients as possible on the Rett Registry UK is an essential part of our work to drive new treatments for Rett syndrome through the UK regulators and payers. The graph below shows the number of UK individuals registered in the last three months with those key dates, highlighting the efficacy of this approach. 

If your loved one is not yet registered on the Rett Registry UK, please use the link below to complete the registration.