What We Do


what we do

Reverse Rett is a UK medical research charity working to speed treatments and a cure for Rett Syndrome. Rett Syndrome has already been reversed in the lab. We work to drive these promising lab developments into tangible treatments and a cure for people living with Rett Syndrome today.

About us

Reverse Rett exists to accelerate treatments and a cure for Rett Syndrome. We fund international Rett Syndrome research through our longstanding partnership with the US based, Rett Syndrome Research Trust (RSRT). In the UK, we work to ensure that as...

What is Rett Syndrome?

Imagine a little girl who can’t speak, play or use her hands, losing the ability to walk, plagued by problems with eating and breathing, becoming locked into a body that doesn’t work. This is Rett Syndrome and we are working to beat it.

UK Rett Syndrome Patient Registry

Reverse Rett holds the only current and accurate registry of UK patients with Rett Syndrome. If you care about someone with Rett Syndrome, please register them today. The information submitted is completely confidential.


Rett Syndrome research is making strides in understanding the underlying cause of Rett Syndrome, finding ways to treat symptoms and figuring out how to reverse the condition completely with the help of some of the world's best scientists.


Newly diagnosed?

Reverse Rett holds the only current and accurate registry of children and adults with Rett Syndrome in the UK. Register now, so that we can contact you as and when we are seeking to recruit and inform patients about upcoming trials.

Where your money goes

Reverse Rett is the only UK organisation currently funding Rett Syndrome research. Here you can see all our Annual Reports and accounts as well as our Impact Report for 2016 showing what we've achieved with the money you have raised.