We are proud of our ambassadors and honoured to have them continually support our efforts in so many different ways.
Thank you all for representing Reverse Rett
We are proud of our ambassadors and honoured to have them continually support our efforts in so many different ways.
Thank you all for representing Reverse Rett
Andre is an author who lives in the beautiful North Yorkshire Dales also known as God’s Country. He started writing easy read teen fiction books when he realised just how few teens read books as a way to increase literacy and assist more young people to rediscover the pleasure of finishing a book without being intimidated by a huge novel. He is one of few Western authors whose books have been translated and approved for sale in China.
He has been interested in education for a long time although he has no intention of becoming a teacher. He was the chair of governors at his local junior school for many years. Seven years ago, after seeing how a family coped with Rett Syndrome without complaining and making the most of every day, Andre became inspired to try and help raise money to find the cure. He participated in 3 annual, 127-mile walks from Liverpool to Leeds along the canal raising thousands for Reverse Rett.
In 2017 Andre wanted to raise money in a smarter way for Reverse Rett and educate the world and especially the medical world about Rett Syndrome. This condition is very rare but is made even rarer by the lack of professionals who can recognise it and often misdiagnose it as something different.
He wanted to use his writing to spread not only awareness that Rett Syndrome exists but to also illustrate difficulties for families caused by the lack of awareness and to give comfort and ideas to other families enduring a similarly challenging situation. After a year of interviews, research and writing, Andre published 'Living Like Livvy,' telling the story of Sara Meredith’s daughter, Livvy.
This book has been sold in many countries and has raised huge awareness of issues facing Rett families. He is also involved in the production of a professionally produced audiobook telling this story and the translation and publishing of this book in several other languages. The profits generated by way of royalties are all being donated to Reverse Rett from every version of Living Like Livvy.
Andre also seeks to use the messages and stories he receives from Rett Families around the world to increase the contribution from the government in all issues regarding Rett Syndrome. He would gladly attend and support any Reverse Rett charity fundraising event if he is available and gladly support it on his social media.
His goal is to one day publish a book telling the incredible story of a girl who has been cured of Rett Syndrome and strongly believes it is no longer a matter of if, but when.
Ten year old Erin began fundraising two years ago for Reverse Rett when she saw a tweet about the charity by her favourite Rugby League player and fellow Reverse Rett ambassador, Gareth O'Brien.
She has taken on bike rides, runs, done bag packs and has a very popular fundraising page on Facebook (run by her mum) which raffles off prizes donated by companies that Erin has written to. She never misses a chance to tell everyone she meets about Reverse Rett and the girls she's met over the past couple of years.
Erin's fundraising has won her the Wire FM 'Heart of Gold' award and the Warrington Guardian 'Child of the Year' award at their Warrington Inspiration awards ceremony in 2016. She also received the 'Community Champion of the Year' award from her favourite Rugby League team, Warrington Wolves.
Erin successfully nominated Reverse Rett to be the Charity of the Year at Broomfields Primary School in Warrington which she attends.
You can follow Erin's fantastic fundraising by liking her Facebook page
A passion for sport from an early age saw Vicky play football for an all girls under 11 team where she grew up in Cheltenham. She also played for Fulham Ladies whilst at university in Kingston upon Thames. She soon realized her ability would never see her play professionally and decided to talk about it instead!
So now a sports presenter of some 12 years Vicky has presented several shows for Sky including the FA Women’s Cup final, Football First, The British Basketball League, Wimbledon Report and is a daily anchor on Sky Sports News HQ. Vicky hosted the Sky Sports Living for Sport Awards and a “Celebration of Sky’s partnership with British Cycling” for the Chief Executive of Sky - Jeremy Darroch.
A love of live broadcasting Vicky was an integral part of Sky’s Olympic coverage presenting the final parade from outside Buckingham Palace. She also presented the build up to the Champions League final live from Wembley.
Vicky does lots of voice over work, currently voicing FIFA’s weekly football show and previously ITV’s Champions League weekly show for four years.
Vicky has hosted Reverse Rett London twice and has represented Reverse Rett at the BGC Charity Event. She loves working with a live audience and has hosted many major events including Chelsea’s Player of the Year Awards, Everton’s networking events, Crystal Palace Ladies POTY awards, The Football Business Awards, Soccerex, Leaders of Football, The Football Expo in Turkey, Women Win and Rugby League's 'Man of Steel' Awards.
Jim left school in Scotland at 17 with a hunger for news and an eye-watering mullet. Having studied Journalism in Edinburgh, his media career began with Scottish and Universal Newspapers in 1974, moving into television with STV as a news and sports reporter. He quickly became the main anchor of football output, covering 2 World Cups- Mexico '86 and France '98. Now a highly-accomplished sports broadcaster and journalist with 30 years of 'live' match and exclusive interview presentation under his belt, he has come face-to-face with the best sportsmen and women in the world. With Sky Sports, his energetic presentation style and undying love of news-gathering has made him a natural fit for the delivery of the final hours of 'Transfer Deadline Day'.
Jim has supported Reverse Rett since a colleague's daughter (Dylan) was diagnosed with Rett Syndrome in 2011. He jumped out of a plane as part of the 'Skydive for Dylan' Team, took part in 'Cycle for Dylan' alongside fellow Sky Sports presenters, Julian Waters and Rob Wotten and Reverse Rett co-founder, Andy Stevenson, hosted the Cure for Dylan Dinner and even famously gave up chocolate for the 'Give it up for the Big Give' campaign.
Kevin is a professional Rugby League player for Warrington Wolves. He burst onto the Rugby League scene in 2007 scoring two tries in his debut game against Leeds Rhinos. He finished that season with 15 tries in 15 games and made the Super League Dream Team at the end of the year after scoring some spectacular long range tries. Kevin left Warrington in 2009 but after spells at London, Wakefield and Swinton resigned for his hometown club in 2014. Since his return he has established himself in the first team and in 2015 equalled his best return since his debut season with 15 tries in 23 games. He has since signed a 2 year contract extension to stay with the wolves till the end of 2017.
Kevin was asked to support Reverse Rett by his friend, former player and current under 16s coach, Gary Chambers who is also an ambassador for Reverse Rett and jumped at the chance. We are looking forward to Kevin carrying on his remarkable scoring record and promoting the work of Reverse Rett along the way.
Rhea Kara first heard about Rett Syndrome in 2014 when her school, Eaton House in Clapham, chose Reverse Rett as their charity of the year. Passionate about art and painting, Rhea was so moved by the idea of girls unable to use their hands or to express themselves, that she decided to take up the fundraising challenge herself and to use her own artistic talents to help.
Since that first inspiration in 2014, Rhea has painted over 400 unique canvasses, created over 200 handmade cards, sewn over 50 custom-designed tote bags, and single-handedly raised over £45,000 for Rett research. Her incredible art-work and generosity have attracted considerable national attention: several newspapers including The Independent and The Guardian have featured her story, the National Institute of Fundraising short-listed her for Young Fundraiser of the Year, Just-Giving ranked her within the top 1% of fundraisers of 2015, GAP chose her as an ambassador for their inspirational girls campaign and the Prime Minister recognised Rhea’s achievements with a ‘Points of Light’ award.
In 2016 Rhea won the 'Young Fundraiser of the Year' Award at the Pride of Britain Awards, earning her considerable media attention as well as meetings with Apprentice star, Lord Sugar, Prime Minister Theresa May, and several high profile celebrities at the televised awards ceremony. In a special auction on the night, two of Rhea's beautiful paintings were sold to Simon Cowell and One Direction's Louis Tomlinson for a mere £15,000 each! Since then, she has gone on to create unique paintings for each of the other Pride of Britain winners, which are now available to buy as limited edition greetings cards on Rhea's website.
However, what is perhaps most remarkable about Rhea is that despite all the attention and accolades, she has remained genuine and humble, as well as unerringly determined to keep on helping our girls. She recently told her mum, Roshan, that she would keep on painting and raising money until she and Hannah, the little girl who first inspired her to support Reverse Rett, could go on holiday and do all the same things together. On her own website, she writes: 'I will not stop fundraising till we find a cure for Rett Syndrome'.
Rhea's canvas artwork, handmade cards and creative gifts are now available to buy online at http://rheaforreverserett.co.uk/ with all proceeds going directly to Rett research.
Gary joined Warrington Wolves in 1989 from Cumbrian amateur team, Kells. He made 210 appearances for Warrington scoring 10 tries and retired in 2000. He then joined the coaching staff at the club serving as assistant coach, Under 19's and after a short stint as Head Coach at Swinton Lions in 2014 is now under 16's coach. He has also coached the England Academy Team against Australia. He has been responsible for bringing through some great talent into the Warrington side over the past 10 years including Kevin Penny, Ben Harrison, Tyrone McCarthy, Mike Cooper, Gareth O'Brien and Ben Currie. Gary is the longest serving employee at Warrington Wolves and is also the Assistant Director for Community at Harrop Fold School in Salford after achieving a teaching degree at the end of his playing career.
Gary started fundraising for Rett research in 2009 when he took part in a 36 hour Golf Marathon alongside Reverse Rett co-founder, Andy Stevenson and Salford Red Devils player, Gareth O'Brien. He has gone on to raise thousands of pounds through a number of challenges over the past 7 years including the Bald Mountain Crusade which won a Just Giving award in 2011 for most creative fundraising video. He has vowed to carry on doing whatever he can to help and promote Reverse Rett.
Gary is also starring in the C4 series, Educating Greater Manchester where he is known as Mr Chambers, Chambers and Prince!
With four critically-acclaimed studio albums and a live show defined by the British music press as 'unmissable,' David Ford is essential listening for anyone who gives a damn about music.
David's songs combine Americana, English melodicism and a touch of rock 'n' roll, tied together with finely-crafted lyrics. His emotive stories of social commentary, politics and love in a world going to hell are powerful, engaging and hark back to an era of classic songwriting. Think Tom Waits, Neil Young and Randy Newman. From raw-throated passion to delicate piano balladry, Ford's music is intelligent, witty and authoritative.
Hailing from the South Coast of England, Ford has been lauded by press and public alike throughout his decade-long solo career. His debut album, I Sincerely Apologise For All The Trouble I've Caused, was included in both The Times and Word Magazine's top ten albums of the year and his latest album, Charge, was described by press as his “best album to date. ” His records have achieved number one slots on iTunes and in February 2014, a bizarre twist of fate saw him travelling to Paris to receive the French Grammy award for song of the year. David ended 2014 with a sell-out tour of the UK backed by a string quartet, playing selections from his new mini-album, The Arrangement.
A multi-instrumentalist and master of the loop pedal, Ford's mesmerising live performances regularly sell-out venues on both sides of the Atlantic. As well as playing headline shows to his devoted and loyal fan base, he has toured with and supported artists such as Elvis Costello, Ray LaMontagne, Aimee Mann, Sara Bareilles, Gomez, Aqualung, Richard Ashcroft, Suzanne Vega, Augustana, Ingrid Michaelson and Jakob Dylan.
Despite countless plaudits, the songwriter flies below the radar for many, a subject he has documented in a book entitled, I Choose This – How To Nearly Make It In The Music Industry. Yet Ford's exquisite songwriting and powerful live performances ensure he remains one of the UK's most important singer/songwriters in the eyes of critics and genuine music lovers.
David has supported Reverse Rett since he gave permission for his song 'What's not to Love' to be used on our emotive video for Reverse Rett London in 2013. Since then he has raised over £4000 at two sold out charity concerts on his 2013 'Milk and Cookies' tour. At our 2014 London event he once again allowed us to use his song 'A call to Arms' on the video at our flagship event and also went one better by appearing live on the night performing five songs including the two that are so relevant to our cause.
David once again chose to support Reverse Rett at his two 'Milk and Cookies' gigs at Christmas 2015 which raised an incredible £12,648.77
Dominic Laurie is a presenter and reporter on Economics and Business for the BBC. He currently presents business programs on the BBC World Service. Until the end of last year he worked on BBC Radio 5 live and BBC Breakfast on BBC1. He has also worked in Brussels, on the lunchtime programme Working Lunch, on the BBC News Channel and BBC Radio 4's Today program.
He has also worked briefly as a freelance London-based correspondent for Voice of America, covering the Eurozone crisis as a video journalist.
He is also a relief anchor for 5 live, covering mainly for Shelagh Fogarty. He was presenting on 5 live when the news of the death of Baroness Thatcher broke on 8 April 2013, and also in summer 2014 when the Malaysia airways plane crashed over Ukraine.
Born in London in April 1974. He grew up in Highgate in London, studied French and Italian at Robinson College, Cambridge, during which time he spent a year in Rome teaching English at a secondary school. In the wake of the election of Pope Francis in March 2013, the BBC temporarily deployed Laurie as an Italian speaker to Rome as a general news correspondent.
On graduation he was recruited by United Biscuits, working as a car-based account manager selling crisps and biscuits in South Wales, Cardiff and West Wales. He was then promoted to work in marketing on a brand of diet crisps in London. In 1999 he joined British Airways's then budget airline Go Fly as brand manager, later promoted to UK Marketing manager. He retrained as a journalist in 2003.
Dominic's friend has a niece with Rett Syndrome and he represented Reverse Rett on Celebrity Mastermind in January 2015 emerging victorious.
Karl Morris is one of Europe’s leading performance coaches and founder of The Mind Factor.
From the world of golf he has worked with over 100 PGA Tour, European Tour, Challenge Tour, LPGA Tour and Ladies European Tour players and has built a reputation as something more than a pure golf psychologist, but that of a Mind Coach, who will help you get the best out of the ability you have, no matter what the level, no matter what the sport, no matter what the business.
His clients and former clients include 2011 Open Champion Darren Clarke, 2010 Open Champion Louis Oosthuizen, 2010 US Open Champion Graeme McDowell, 2011 Masters Champion Charl Schwartzel and former World Number One, Lee Westwood.
A consultant to the PGA of Great Britain and Europe he has presented seminars all over the world from the Australian PGA to the South African PGA to all European PGAs, the GUI and the Hong Kong Golf Association.
Also, working with top class amateurs, he has worked with numerous Walker Cup and Curtis Cup players all the way through the game to aspiring amateurs or simply club golfers who just know there is something missing.
From the world of business, his clients include amongst others Red Bull, Volvo, Lloyds TSB, Investec, Barclays Wealth, RBS and Genworth and he has worked with a number of top executives from these and other firms to get the best out of them no matter what their field of endeavour.
As a Professional Golfer in his own right, he has been at the “coal-face” of competitive sport. Karl is also a very successful author with a considerable library of books and cd programmes.
Karl has been involved with Reverse Rett since it’s inception due to his life long friendship with co-founder, Andy Stevenson.
Charlie’s reputation as one of the UK’s best ultra runners is growing fast. He was the UK Ultra Race Champion in 2012 with a string of impressive performances in various ultra races. Charlie began supporting Reverse Rett when he ran the London Marathon in 2011. He won a National Just Giving competition for the most donations on his Just Giving page during the run up to the Marathon after we ran the ‘Chip in for Charlie’ campaign. Since then he has proudly worn his Reverse Rett t shirt at races all over the UK and Europe.
Gareth is a professional Rugby League player for Salford Red Devils. He is a product of the Warrington Wolves Academy and was part of the England Academy team who famously beat Australia in 2010. Gareth made 61 appearances for Warrington Wolves, scoring 18 tries and kicking 77 goals. At the end of the 2015 season he signed for Salford Red Devils where he made 65 appearances, scoring 16 tries and kicking 143 goals. He also kicked the winning drop goal in the 'Million Pound Game' in 2016 which saved Salford from relegation. After 4 rounds of the 2018 Super League season he made a big money move to Toronto Wolfpack on a 3 year deal.
Gareth is passionate about Reverse Rett has taken on many sponsored challenges for Reverse Rett including a gruelling 36 hour Golf Marathon, 24 hour row, 24 hour ‘Rettathlon’ and has appeared alongside fellow Ambassador, Lee Briers and other players from the Wolves on two naked calendars. He donated his Man of the Match award to Reverse Rett against Leeds live on Sky Sports. He also launched our successful 'Give it up for the Big Give' campaign in 2014 which enabled us to raise almost £140k in the Big Give Christmas Challenge. He continues to support Reverse Rett at every opportunity.