The General Data Protection Regulations, which are a government law, are changing in 2018 and as an organisation we have to make sure that any information that we have about you is held correctly so that we can continue being in contact with you.
As part of the new changes, if you do not opt in to receiving information from Reverse Rett, we will no longer be able to contact you.
We will never pass your details onto anybody else without your express written permission. Holding contact and other information about you means we can contact you quickly as needed.
Please complete a form for each member of your household by ticking the relevant consent boxes.
You will receive an email confirming your submission.
Please note that if you have entered someone with Rett Syndrome on the UK Rett Syndrome Patient Registry, you will need to complete a consent form for that person as well as for yourself.