Guide for newly diagnosed families


Reverse Rett is a parent-driven organisation, founded and still run by parents and other family members of children with Rett Syndrome.

With the help of other families of children with Rett Syndrome of all ages, we've produced

Never Give Social Workers Tea: A Guide to Surviving a Rett Diagnosis

'Never Give Social Workers Tea' is not a comprehensive guide to Rett Syndrome and all the complexities which life with Rett may bring. It's just some simple and practical thoughts on how to survive the immediate aftermath of a diagnosis, which has has been written heart-to heart, by people who have stood where you stand today.

Order your free copy below.*Please allow 7-10 days for delivery.

One free copy per person. For more copies, there is a small charge of £3 plus p&p.

Please note, if you are a parent living outside the UK, that this guide is fairly UK centric in terms of reference to services etc., but we will still send out if you feel it may be helpful in other ways. Delivery times will obviously be longer depending on your location so please bear with us.

The design and printing of this guide was funded through a generous grant from the MBNA Foundation.

Illustrations have been created pro bono by the extraordinarily talented and kind, Hazel Bee.

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