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Research

Rett Syndrome has a single genetic cause and is one of the only neurological disorders in the world to demonstrate dramatic symptom reversal in the lab.

Reverse Rett was founded in 2010 to compound efforts to accelerate the delivery of treatments and a cure for Rett Syndrome and related MECP2 disorders.

We fund international Rett Syndrome research through our longstanding partnership with the US based, Rett Syndrome Research Trust (RSRT) who are responsible for peer review and monitoring of those projects.

Since we launched, we've delivered over $6 million to RSRT in pursuit of our common goal.

This research has made great strides in understanding the underlying cause of Rett Syndrome, finding ways to treat symptoms and figuring out how to reverse the condition completely with the help of some of the world's best scientists.

Our UK work has a translational impact with clear patient benefits. We work to ensure that as treatments and a cure for Rett Syndrome become viable, they are accessible to patients in the UK. To date, the focus of our UK work has been supporting the research and clinical objectives of a single site at King's College London, where the first UK clinical trial for Rett Syndrome started earlier this year.