At Reverse Rett, our primary goal is to accelerate treatments and a cure for Rett Syndrome and related MECP2 Disorders. We do this primarily by working in partnership with the US based, Rett Syndrome Research Trust (RSRT), providing financial support for international research projects funded by RSRT, in the hope that a collaborative international effort, will ensure faster development of emerging treatments and cures for people with Rett worldwide.
But many countries, including the UK, have a very poor medical infrastructure for the treatment of rare diseases and very poor communication within the medical community of best available medical practice.
In the last few years Reverse Rett has been trying to address this weakness by facilitating collaboration within the Rett medical community and by supporting doctors who are doing research into clinical treatments and running progressive clinics for Rett Syndrome.
This is important for a number of reasons including ensuring that emerging treatments and utlimately the cure or cures for Rett, can be implemented in this country.
It is this area, which is a focus for our work outside the jointly funded projects we fund in collaboration with RSRT.