Staying cool and safe in warm weather


Exposure to extreme heat can be hugely uncomfortable, especially for people with Rett Syndrome and other chronic health conditions.

People with Rett Syndrome have difficulty regulating their temperature and with regulating other body functions like sweating, which can mean that they may be too hot, without it being obvious, ie they may not be flushed or visibly sweating.

Here are several small steps you can take to help keep everyone safe and cool:


  • Set up fans in living areas and bedrooms.
  • Plenty of fluids. Have a supply of cool drinks and water in the refrigerator
  • Children and adults who are tube fed should be given increased fluids as appropriate.
  • All refrigerated medicines should be kept in the fridge at all times, and other medication may need to be moved to cooler places in the house
  • Remember that it’s sometimes hotter inside than outside. Try to keep your bedroom and living space cool, by closing the curtains on windows that receive the sun and opening your windows at cooler times of the day and overnight when safe to do so. Turn off non-essential lights and electrical items as these generate heat.
  • Wear cool clothing: See that the person is dressed in light-weight, light-colored, loose-fitting clothing, preferably of natural fabrics like cotton. Use hats and umbrellas outside.
  • Try to keep out of the sun between 11am to 3pm
  • Never leave anyone in a closed, parked vehicle.
  • Make sure the sunscreen you are using is SPF30 or higher.
  • A loose, cotton, damp cloth or scarf on the back of the neck, or spraying or splashing your face and the back of your neck with cold water several times a day can help keep you cool, so can a lukewarm shower.
  • Close curtains in rooms that face the sun to keep indoor spaces cooler and remember it may be cooler outdoors than indoors
  • Drink plenty of water as sugary, alcoholic and caffeinated drinks can make you more dehydrated.


These are suggestions taken from the gov.uk website, always speak to your own doctor regarding what's best for you and or the person you care for.