Dr Santosh with post-doc researcher, Fedrico Fiori, alongside Reverse Rett Executive Director, Rachael Stevenson and Chair of Trustees, John Sharpe
Listed below are UK clinicians with special interest and or expertise in Rett Syndrome.
Referrals to the specialists listed below will need to be made by your son or daughter’s GP, consultant or paediatrician.
At Reverse Rett, we are actively seeking clinicians with an interest in Rett Syndrome and/or those who are interested in developing Rett-specific provision.
Please contact firstname.lastname@example.org for further information or to have your name and information listed on this page.
Professor Paramala Santosh, Consultant Child & Adolescent Psychiatrist
Centre for Interventional Paediatric Psychopharmacology & Rare Diseases (CIPPRD)
Maudsley Hospital, London
Children and adults up to the age of 24
Professor Jill Clayton-Smith, Consultant in Clinical Genetics
Manchester Centre for Genomic Medicine, St Mary's Hospital, Manchester
Professor Sameer Zuberi, Consultant Paediatric Neurologist
Royal Hospital for Children, Glasgow
Dr Peter Julu, Specialist Autonomic Neurophysiologist
Breakspear Medical, Hemel Hempsted
Children and adults
Neurophysiologist in charge at the Swedish National Rett Centre in Frösön, Sweden.
Dr Ram Kumar, Consultant Paediatric Neurologist
Alder Hey Children's Hospital
Dr Daniel Lumsden, Neurology
Evelina Children’s Hospital, Guy’s & St Thomas’ Hospital, London
Children And Young People Up To The Age Of 19
Dr Jane Williams, Consultant Paediatrician
Nottingham City Hospital, Nottingham
Children and young people up to the age of 19