UK Rett clinicians

Dr Santosh with post-doc researcher, Fedrico Fiori, alongside Reverse Rett Executive Director, Rachael Stevenson and Chair of Trustees, John Sharpe


UK Rett Clinicians

Listed below are UK clinicians with special interest and or expertise in Rett Syndrome.

Referrals to the specialists listed below will need to be made by your son or daughter’s GP, consultant or paediatrician.

At Reverse Rett, we are actively seeking clinicians with an interest in Rett Syndrome and/or those who are interested in developing Rett-specific provision.

Please contact rachael@reverserett.org.uk for further information or to have your name and information listed on this page.


Professor Paramala Santosh, Consultant Child & Adolescent Psychiatrist

Centre for Interventional Paediatric Psychopharmacology & Rare Diseases (CIPPRD)

Maudsley Hospital, London

Children and adults up to the age of 24


Professor Jill Clayton-Smith, Consultant in Clinical Genetics

Manchester Centre for Genomic Medicine, St Mary's Hospital, Manchester

Adults only


Professor Sameer Zuberi, Consultant Paediatric Neurologist

Royal Hospital for Children, Glasgow


Dr Peter Julu, Specialist Autonomic Neurophysiologist

Breakspear Medical, Hemel Hempsted

Children and adults

Neurophysiologist in charge at the Swedish National Rett Centre in Frösön, Sweden.


Dr Ram Kumar, Consultant Paediatric Neurologist

Alder Hey Children's Hospital


Dr Daniel Lumsden, Neurology

Evelina Children’s Hospital, Guy’s & St Thomas’ Hospital, London

Children And Young People Up To The Age Of 19


Dr Jane Williams, Consultant Paediatrician

Nottingham City Hospital, Nottingham

Children and young people up to the age of 19