Who do you know and how can they help? 

It’s not easy gaining wider support when you’re a rare disease charity. 
 
We rely on families, their friends and connections to raise money so we can continue with our work. That’s not always easy as parents of children with a disease as devastating as Rett syndrome are already overwhelmed with their lives. 
 
We’ve had some amazing support from companies and businesses over the past 15 years.  
 
Group Metropolitan are a great example of this. They found out about Rett due to one of their employees having a granddaughter with the condition. They chose to get involved last year with 12 of their employees taking on an epic bike challenge, Office2Office, a two-day cycle from their Warrington office to their head office in Canary Wharf, London, which was a total of 224 miles. The team raised over £60,000 in honour of Lily. 
 
If you know of a company or business who chose a ‘Charity of the Year’ or like to get involved in fundraising for worthy causes then please tell them about Rett syndrome and the work of Reverse Rett. We are here to help with any information you need for the application. 
 
We are focused on curing a rare disease and funding a specialist Rett Centre in London to keep our children as healthy as possible until that cure comes. We need all the help we can get 💜