About RSRT UK
RSRT UK has one intensive focus: to accelerate treatment for Rett Syndrome.
In 2007 a paper in the journal Science described an unprecedented achievement: the reversal of Rett symptoms in a mouse model of the disorder. This outcome has revolutionized the goals of clinical Rett research. No longer confined to treatment management, it is now realistic and urgent to focus on a cure.
RSRT UK formed through a grassroots effort by families of girls with Rett Syndrome across the UK, who have come together in the knowledge that the rate at which this research can progress into treatment will correlate directly with the funding available to pay for it.
That's why we ensure that the maximum percentage possible of donations and funds you raise goes directly to high-quality, translational research. Here's how:
- We are a bare-bones organization running with very low overhead.
- Day-to-day operations and administration of the organization are implemented by our Board of Trustees.
- We have no management costs. Our partnership with the Rett Syndrome Research Trust allows us to make use of their Scientific Advisory Board to identify, monitor and review appropriate research projects.
- To give confidence in our financial governance, our accounts will be professionally prepared, independently reviewed and available on line.
RSRT UK has been designed to be lean, efficient and 100% research-focused. Reversing Rett requires a new level of accountability and determination to make it happen.