CIPP Rett Centre

The CIPP Rett Centre is a clinical treatment and research centre for children and adults with Rett Syndrome and related disorders of all ages.

Based at King’s College Hospital, the Centre monitors children and adults with Rett Syndrome and related disorders nationally through the CIPP Rett Database and conducts clinical trials.

The CIPP Rett Centre accepts referrals from a variety of sources. These include Consultants from various specialities (including paediatricians and neurologists), GPs, patient organisations and self-referrals. To refer a patient to the CIPP Rett Centre, email: [email protected]

or contact [email protected] for more info.

CIPP Rett Centre intervention is based on a holistic multi-modal approach. As part of the referral process, parents/carers will be asked to complete a battery of online questionnaires which will inform the acceptance and prioritisation of the referral. Local services are expected to be either involved or be willing to work within a Shared Care Protocol in order to optimise outcomes quickly.