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  • Rett Registry UK: Visibility, opportunity and progress 

    Reverse Rett first launched the Rett Registry UK in 2014, not quite scribbled on

  • Taysha Gene Therapies Update 15 May 2025 

    On 15 May 2025, Taysha Gene Therapies published a press release with updates to

  • Can You Help Us Open Doors? 

    For a small charity, focusing on a rare disease, getting our foot in the

  • Meet the Reverse Rett Team 

    Rachael Stevenson CEO, Co-Founder, Reverse Rett  Rachael Stevenson is the Co-Founder and CEO of

  • Reverse Rett Marathon Runners

    The London Marathon is one of the world’s greatest and most popular Marathons. It

  • Empty spaces and unwanted freedom: When caring comes to an end – Special Needs Jungle

    By Catriona Moore The loss begins to hit at about 3.30pm on weekdays. That’s

  • Rodrigo’s JOGLE Adventure for Sienna

    Rodrigo Freeman is running from John O’Groats to Land’s End next month for Reverse

  • Living with Rett: A Mother’s Raw Reflection

    By Megan Thorne I’ve been struggling lately with managing and balancing my fears surrounding

  • Blankets and rugby for Reverse Rett

    Everyone who has a child with Rett or MECP2 Duplication syndrome knows how difficult

  • Reverse Rett Board of Trustees: Our steady foundation for changing times 

    On April 1st, the Reverse Rett Board of Trustees met for our annual in

  • Why ‘Good Enough’ is Enough; Letting Go of Mum Guilt as a Parent to a Child with Complex Needs  

    By Rhiannon Louden (She/her), Rare mum chronicles  Let’s stop putting pressure on ourselves to

  • 100 Fundraising Ideas

    Over the past 15 years 80% of the money raised for Reverse Rett has