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Survey of the impact of Rett syndrome on the lives of people with the
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As we are seeing an increasing number of emergency hospital visits for UK
Do you have shares you don’t want, or are unprofitable to sell? In a
If the answer to this is yes, first, please accept our deepest and most
Rare Disease Day takes place on the rarest of days, 29th Feb on a
It’s not easy gaining wider support when you’re a rare disease charity. We rely on
Holidays like Valentine’s Day are a good time to recognise our much loved children,
Lawrence Crompton, a master’s student in Speech and Language Therapy at Manchester Metropolitan University,
February 2-8 is feeding tube awareness week. Tube feeding is where essential feeding
Over the past few years we have been slowly increasing the number of
Since the recent announcement that a child taking part in the Neurogene Rett syndrome
The Big Give Christmas Challenge has been the highlight of our year since the