Why Jesy Nelson’s Fight for SMA Matters to the Rett Community
You might’ve seen recent headlines about Jesy Nelson, former Little Mix star, bravely sharing
Menu
You might’ve seen recent headlines about Jesy Nelson, former Little Mix star, bravely sharing
Taysha Gene Therapies announced this week that they have dosed the first patient of
Musician, Andrew Gent has a real passion for music and is a true talent
A year on, we honour the little girl whose courage continues to light the path for everyone affected by Rett syndrome.
Why are there so many Rett syndrome registries — and which one should you
For families living with Rett syndrome in the UK, the recent announcement that Acadia
For the third year running we had a Reverse Rett team in the Royal
The Big Give Christmas Challenge will begin at Midday on Tuesday 2nd December and
A fine pink lineA baby on the wayA new life growing inside meA black
October 2025 This month has brought two major steps forward in the race to
Gathering Dust Before you were born, I gathered up hopes, dreams. Our future made
We recently learned that Acadia Pharmaceuticals has decided to postpone indefinitely its plans to