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  • Mark Reilly sitting with his daughter who has Rett syndrome, sharing a caring moment at home.
    Join us on the Edinburgh Kiltwalk- Wee Wander on September 13th

    By Mark Reilly, Dionne’s dad and Community Fundraising and Advocacy Manager at Reverse Rett

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  • Help Us Build the Next Chapter of the Rett Syndrome Health Milestones Project 

    Over the past year, many of you have taken part in our Health Milestones

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  • Young girl lying in a hospital bed surrounded by healthcare professionals and a family member during a hospital visit.
    Reverse Rett, the CIPP Rett Centre and Looking to the Future 

    For six years, from 2019 until September 2025, Reverse Rett was proud to provide

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  • Sign outside King's College Hospital showing the main entrance and emergency department directions.
    Continuity of Care Following Changes to Specialist Rett Services  

    Reverse Rett recognises the significant contribution the CIPP Rett Centre has made to the

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  • Faye Bolan and Andy Stevenson talking during a Reverse Rett event while attendees network in the background.
    Key Takeaways from LEAP Weekend 2026: Hope, Progress and Living Well Today

    By Faye Bolan, PhD, Senior Analyst at Costello Medical This year’s Learn, Empower, Advocate,

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  • Attendees listening to a panel discussion at the Reverse Rett LEAP Education Weekend 2026 conference.
    LEAP 2026: Bringing World-Class Rett Syndrome Education to UK Families

    We held our third Reverse Rett LEAP Education Conference on the weekend of June 27th

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  • Two young girls wearing England football shirts and glasses sit together on a sofa, smiling and looking at each other.
    £20,540 Raised – Thank You for Helping Us Be Their Voice

    Thank you so much to all our supporters who doubled their donation and shared our social media

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  • A young child smiles while sharing a joyful moment with an adult during a play session, highlighting connection and support for families affected by Rett syndrome.
    Small Charity Week: Why Small Charities Matter

    This Small Charity Week, we’re celebrating something that sits at the heart of everything

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  • Taysha Gene Therapies logo on a white background.
    Taysha releases interim data from REVEAL TSHA-102 trial

    Taysha Gene Therapies have completed dosing of all 17 patients in the REVEAL trial

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  • A smiling young child looks towards the camera while sitting indoors, capturing a joyful everyday moment for a family affected by Rett syndrome.
    DOUBLE your donation during Small Charity Week 2026

    We at Reverse Rett know how hard it is to navigate life with Rett

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  • Graphic announcing a clinical trial update with the Neurogene logo and a DNA strand illustration on a dark blue background.
    Neurogene completes dosing of patients in their EMBOLDEN NGN-401 trial 

    Neurogene have finished dosing all patients in their EMBOLDEN clinical trial, they announced today. The treatment

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  • Close-up of a smiling young girl sitting in a supportive wheelchair with a transparent rain cover, looking to one side.
    The Ruby Award Shortlist Announcement

    Ruby Leigh Pollard was a bright, joyful little girl and the first child in

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