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  • Purple diamond logo with a sapling growing out of the tip
    Neurogene Announces First Patient Dosed in High-Dose Cohort of NGN-401 Gene Therapy Clinical Trial for Rett Syndrome

    On June 18th, Neurogene provided an update on the first “high dose” patient in

  • Taysha Announcement Key Takeaways

    On June 18th, Taysha shared interim clinical data from the REVEAL Adolescent & Adult

  • Purple diamond logo with a sapling growing out of the tip
    Neurogene press release: NGN-401 Gene Therapy for Rett Syndrome Selected by FDA for START Pilot Program

    On June 3rd, Neurogene announced that the FDA has chosen their Rett syndrome gene

  • Charities urged to check fundraisers’ credentials due to Pudsey scammer

    Charities have been in the news this week, due to the unscrupulous acts of

  • Taysha receives go-ahead for early dose escalation in adolescent and adult Rett syndrome gene therapy trial 

    Yesterday, 19th March 2024, Taysha Gene Therapies published a press release with an update

  • Scoliosis in Rett syndrome: Repeat cancellations of essential operations in UK as a safeguarding concern.

    This article may be a difficult read for young or newly diagnosed families but

  • Why fundraising for Reverse Rett is still Vital

    2024 is already proving to be a promising year for the UK Rett Community

  • Choose Your Trek for Reverse Rett

    by Andy Stevenson This year we have three Reverse Rett team treks taking place,

  • Purple diamond logo with a sapling growing out of the tip
    Neurogene press release: Rapid enrolment and expansion

    Neurogene has published a press release today with an update to their Rett syndrome

  • Taysha Gene Therapies updates to Rett program TSHA-102

    Taysha Gene Therapies has announced several updates to the TSHA-102 program through a press

  • Oliver Freeman joins the Reverse Rett Board of Trustees

    We are delighted to welcome, Oly Freeman to the board of Trustees at Reverse

  • Can you Rise for Rett? 

    2024 is already proving to be an exciting year for the UK Rett Community with