Latest
News

  • Oliver Freeman joins the Reverse Rett Board of Trustees

    We are delighted to welcome, Oly Freeman to the board of Trustees at Reverse

  • Can you Rise for Rett? 

    2024 is already proving to be an exciting year for the UK Rett Community with

  • My Top 10 Fundraising Tips 

    by Andy Stevenson I recently held my first fundraising workshop on Zoom. Titled ‘The

  • Two UK gene therapy trials for children with Rett syndrome cleared by UK regulator

    by Rachael Stevenson Last week, gene therapy companies Neurogene Inc and Taysha Gene Therapies

  • Taysha announcement: Key takeaways

    On 10 January 2024, Taysha Gene Therapies announced a press release sharing the news

  • Neurogene announcement: Key takeaways

    On 5 January 2024, Neurogene announced a business update and 2024 outlook. This news

  • The Big Give Christmas Challenge

    A huge thank you to everybody who helped us reach our target and more

  • What is gene therapy and how can it help people with Rett syndrome?

    September 2023   Emerging Gene Therapies Bitesize – Session 1 Reverse Rett CEO Rachael Stevenson

  • The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway. 

    Much is going to be required of our very small, rare disease organisation at

  • Neurogene doses first paediatric patients in US clinical trial of NGN-401 gene therapy 

    November 30th 2023-Neurogene has announced today that they have dosed the first two female

  • Taysha Gene Therapies Announcement

    Taysha Gene Therapies have announced today that their clinical trial of TSHA 102 which

  • Taysha update on patients 1 & 2

    On 14th November 2023, Taysha Gene Therapies provided an update on patients 1 and