Latest
News

  • Neurogene completes registration for their EMBOLDEN trial 

    Neurogene announced yesterday that they have recruited and enrolled all patients in their EMBOLDEN

  • Writers of the Rett World 

    “I never thought of myself as a “typical” girl growing up; I really wasn’t.

  • Our incredible fundraisers from this month 

    We’ve had some truly incredible events this past month. We’d like to shout out

  • Introducing the Chair of our Medical and Scientific Advisory Board: Dr Daniel Lumsden 

    Earlier this month, we announced the launch of our Medical and Scientific Advisory Board.

  • The Hidden Strategy Behind Reverse Rett Awareness Posts 

    What do Facebook frames and driving treatments have in common? More than you might think. 

  • Andy Stevenson presents at the Bio-Neuroscience Conference in Amsterdam

    by Reverse Rett Co-Founder and Deputy CEO, Andy Stevenson I first met Stuart Cobb

  • What the Government is proposing to do with the SEND system, how it would affect your child, and what you can do about it  

    ‘Amy Reyes pictured in her favourite place next to dad, Eduardo Reyes playing piano‘

  • Reverse Rett Launches Medical & Scientific Advisory Board

    We are pleased to announce the formal launch of the Reverse Rett Medical &

  • We are Hiring 

    Community Fundraising & Advocacy Manager Reverse Rett   Hours: 35 hours per week (permanent)  Holidays: 28 days

  • Daybue Rejected by the EU: What This Means for Families and Why Patient Advocacy Matters

    The European Medicines Agency has rejected Daybue for Rett syndrome. We explain why
    and what this means for families and future treatments.

  • AI: A simple guide 

    Everyone’s talking about AI. It’s changing the way people work, write and research. So,

  • When one devastating decision raises fears for another community

    A note to our Rett families, with solidarity for the Batten community Many of