Reverse Rett Podcast

 

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Many people have never heard of Rett syndrome and won’t understand how deeply it affects patients and families. Listening to these podcasts with affected families sharing their stories, can be a good way to learn more about the condition and connect to those touched by Rett syndrome.
 

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‘The last 12 months has been a difficult and isolating time for all of us, especially for those who are trying to protect someone with a rare disease and manage the often overwhelming responsibility of caring for them at the same time. In this time where we are all consistently ‘connected’ but increasingly disconnected, we hope the podcast gives listeners insight into the lives of families who love someone with Rett Syndrome and where needed, a sense of solidarity throughout these challenging days.’

 

Rachael Stevenson, Co-founder/Executive Director of Reverse Rett